Meet the ON-FIRE Teams! On the last day of the World FTD Awareness Week, we want to put the spotlight on the teams behind ON-FIRE. Here we share quotes and pictures that some of the teams wanted to share with the community for this occasion. A big thank you to everyone for all your dedication
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Researching FTD: Brain Scans and Blood Tests Researchers use different tools to understand frontotemporal dementia (FTD), including brain scans and blood tests. MRI and PET scans provide complementary information: MRI shows the brain’s structure, while PET can reveal changes in processes such as energy use or inflammation. Blood tests can help researchers investigate genetic causes,
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As a part of FTD Awareness Week, we want to give platform to people directly affected by Frontotemporal dementia. This piece was written by Joanna Sinclair, whose mother was diagnosed with FTD. Living Well with Frontotemporal Dementia: Finding Joy, Purpose and Connection after Diagnosis A diagnosis of Frontotemporal Dementia does not mean life stops. It
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World FTD Awareness Week runs from 28 September to 4 October 2026. Throughout the week, we will be sharing information about frontotemporal dementia, the experiences of people affected by it, and the research seeking to improve diagnosis, care and treatment. What is Frontotemporal Dementia? Dementia does not always begin with forgetfulness. Sometimes the first signs
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From “Inflammation” to “Innovation”: How ON-FIRE is accelerating research in frontotemporal dementia Inflammation emerged as a key player in dementia, contributing to the death of brain cells and the progression of symptoms. It was this link that inspired the launch of ON-FIRE, with the objective of building a national resource to investigate inflammatory processes in
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