Meet the ON-FIRE Teams! On the last day of the World FTD Awareness Week, we want to put the spotlight on the teams behind ON-FIRE. Here we share quotes and pictures that some of the teams wanted to share with the community for this occasion. A big thank you to everyone for all your dedication
Meet the ON-FIRE Teams! Read More »
Researching FTD: Brain Scans and Blood Tests Researchers use different tools to understand frontotemporal dementia (FTD), including brain scans and blood tests. MRI and PET scans provide complementary information: MRI shows the brain’s structure, while PET can reveal changes in processes such as energy use or inflammation. Blood tests can help researchers investigate genetic causes,
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As a part of FTD Awareness Week, we want to give platform to people directly affected by Frontotemporal dementia. This piece was written by Joanna Sinclair, whose mother was diagnosed with FTD. Living Well with Frontotemporal Dementia: Finding Joy, Purpose and Connection after Diagnosis A diagnosis of Frontotemporal Dementia does not mean life stops. It
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World FTD Awareness Week runs from 28 September to 4 October 2026. Throughout the week, we will be sharing information about frontotemporal dementia, the experiences of people affected by it, and the research seeking to improve diagnosis, care and treatment. What is Frontotemporal Dementia? Dementia does not always begin with forgetfulness. Sometimes the first signs
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From “Inflammation” to “Innovation”: How ON-FIRE is accelerating research in frontotemporal dementia Inflammation emerged as a key player in dementia, contributing to the death of brain cells and the progression of symptoms. It was this link that inspired the launch of ON-FIRE, with the objective of building a national resource to investigate inflammatory processes in
Inflammation To Innovation Read More »
From Monday 18 May to Sunday 24 May, Dementia Action Week shines a spotlight on the nearly one million people in the UK living with dementia and the families who support them. It is a time to raise awareness, encourage action, and think about how we can improve diagnosis, care, policy, and research. Across the
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Our Spring ON‑FIRE Newsletter is now out! This issue includes key study milestones, updates on our expanding UK site network, a spotlight on the Biorepository team, and details of upcoming events and webinars. Read the Spring Newsletter here:
Since launching our ON-FIRE Conversations webinar series in December 2025, we have been bringing together experts from across the UK and beyond to share knowledge about frontotemporal dementia (FTD) and related conditions. These monthly sessions aim to provide educational materials, but also a space for Q&A, active discussions and sharing expertise – they have quickly become a valuable resource for
ON-FIRE Conversations: Building Knowledge and Community Through Education Read More »
One year ago, ON-FIRE launched with a clear mission: to accelerate Frontotemporal dementia research and treatments by understanding the role of inflammation and its genetic and environmental drivers, and creating a network for frontotemporal dementia research and trials across the whole UK. After months of preparation, recruitment began in Cambridge in December 2023, and has
Celebrating one year of ON-FIRE: over 100 participants and growing Read More »
We’re thrilled to announce the launch of our very first ON-FIRE study newsletter! This Autumn 2025 edition marks an exciting milestone for our study as we begin sharing regular updates with our participants, patients, and the wider community. We plan to publish these newsletters biannually to keep you informed about our progress and celebrate the
Introducing Our First ON-FIRE Study Newsletter! Read More »